Recognition of Research Participants’ Need for Autonomy

Autonomy: the need for limits.

This essay addresses the issue of the autonomy of the National Health Service (NHS) patient in the UK. It is argued, with reference to clinical examples, that some patients abuse their rights to medical care to the detriment of other patients and the service providers. A case is made for limiting the rights of patients in order to improve the service for all who use it. A range of mechanisms ar...

ICMR's ethical guidelines for biomedical research on human participants: need for clarification.

The "Ethical guidelines for biomedical research on human participants" prepared by the Indian Council of Medical Research in 2006 came as a welcome step in the process of regulation of research on human subjects, since clear cut Indian guidelines were absent earlier. The guidelines have been accepted as the standard operating manual by Institutional Ethics Committees (IEC) in India. However, ov...

'You need to let your voice be heard': research participants' views on research.

BACKGROUND Persons with intellectual and developmental disabilities have had regrettably few opportunities to voice their opinions on aspects of research with which they have had direct experience. Understanding and responding to these views can contribute to policies and practices that increasingly treat people as they desire to be treated. METHODS We conducted individual interviews and focu...

The Need for Research

Need for Environmental Research